GES Colloquium: Indigenous data ethics in genomics and health

GES Colloquium: Tuesday, 11/8, 12 PM ET in Poe 202 and via Zoom

Indigenous data ethics in genomics and health

Krystal Tsosie, PhD, MPH, MA, Presidential Postdoctoral Fellow and Co-Founder, Native BioData Consortium, at Arizona State University

Website | Twitter @kstsosie

Our DNA, our data, our health, our rights: thinking beyond mere inclusion in genomics datasets and thinking about equity and Indigenous data sovereignty. 

Abstract

For far too long, Indigenous peoples have been the subjects of genomics research and datasets. If we as scientists are not too careful, current efforts to increase inclusion of diverse, underrepresented populations, such as Indigenous populations, may repeat ethical harms of past large-scale diversity projects.

Related links:

• Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data (PDF*),
  Mackey T.K., Calac A.J., Keshava B.S. C., Yracheta J., Tsosie K. S., Fox K. Cell, 185, 2022. doi: doi.org/10.1016/j.cell.2022.06.030. *Access to the PDF of this article requires login with NC State Unity ID
• Native Bio-Data Consortium

Speaker Bio

Dr. Krystal Tsosie’s (Diné/Navajo) research centers on ethical engagement with Indigenous communities regarding precision health. She incorporates interests in genetic epidemiology, public health, health AI, and genetic counseling related to Indigenous data sovereignty and co-founded the Native BioData Consortium, the first Indigenous biological and data repository for US Tribal nations. She will be the first Indigenous geneticist at Arizona State University and hopes to continue advancing Indigenous-led approaches to genomic data equity.

https://research.ncsu.edu/ges/event/ges-colloquium-2022-11-08/